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Love and Forgetting: A husband and wife's journey through dementia

par Julie Macfie Sobol

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Freedom 55? The so-called "Golden Years"? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer's in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together. As Ken's disease progresses and his voice dwindles, Julie continues the narration, sharing her sadness, frustration, and attempts to find the best care for her husband. Their chronicling of the ravages wrought by LBD is intelligent, insightful, enlightening, and often humorous. It is-at heart-a love story.… (plus d'informations)
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"Chronic disease is an uninvited guest that moves into your home and then proceeds to act as if it's the host and you're the guest. 'I'll set the rules,' the intruder tells you, standing in front of the door with arms folded tightly. 'And please to remember, there is no room for reasonable now. There is only this is the way it is.'"

Julie and Ken Sobol have had a long, happy marriage and raised a well-adjusted family, all successful adults with their own children. They are writers, and have been writing partners, as well as life partners, for some forty years. When Ken gets Lewy Body Disease (LBD), they decide to co-write about their experiences. Julie will continue the narration on her own as Ken, eventually ravaged by the “fatal fog of Lewy Body Disease” becomes becomes unable to participate any longer. She shares her sadness, frustration, and tireless attempts to find the best care for Ken.

Intelligent, enlightening, and even humourous, Love and Forgetting is at its heart a love story. For me, the book was also educational: I confess I had not heard of Lewy Body Disease. Highly recommended. ( )
3 voter lit_chick | Aug 26, 2014 |
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Freedom 55? The so-called "Golden Years"? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer's in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together. As Ken's disease progresses and his voice dwindles, Julie continues the narration, sharing her sadness, frustration, and attempts to find the best care for her husband. Their chronicling of the ravages wrought by LBD is intelligent, insightful, enlightening, and often humorous. It is-at heart-a love story.

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