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I Live a Life Like Yours: A Memoir

par Jan Grue

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603435,725 (4.38)2
Biography & Autobiography. Nonfiction. Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life-his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father-he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human. Along the way, Grue moves effortlessly between his own story and those of others, incorporating reflections on philosophy, film, art, and the work of writers from Joan Didion to Michael Foucault. I Live a Life Like Yours is a love story. It is rich with loss, sorrow, and joy, and with the details of one life: a girlfriend pushing Grue through the airport and forgetting him next to the baggage claim; schoolmates forming a chain behind his wheelchair on the ice one winter day; his parents writing desperate letters in search of proper treatment for their son; his own young son climbing into his lap as he sits in his wheelchair, only to leap down and run away too quickly to catch. It is a story about accepting one's own body and limitations, and learning to love life as it is while remaining open to hope and discovery.… (plus d'informations)
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This memoir by Jan Grue, translated from Norwegian by Becky Crook, is a sort of stream-of-consciousness contemplation of his life. As a child, Grue was diagnosed with spinal muscular atrophy, and for the most part he requires a wheelchair to help him get around. He talks about growing up with a disability, societal biases and expectations, his family’s wrangling with social services to allow him to live a normal life, and how he navigates being a father.

The story is told in an interesting format: one very long “chapter”, but lots of short paragraphs, with clinical notes and relevant quotations from literature and music sprinkled throughout the text. It could be read in one go in an afternoon, or read over several sessions. Recommended for those who like memoirs told in a non-traditional format and those who want to read stories of lived experience with disability. ( )
  rabbitprincess | Nov 10, 2021 |
Jan Grue has lived in and out of a wheelchair his whole life. He is an academic and fiercely intellectual, closely examining every aspect of his life through the prism of his condition, often informed by theory but also told with artistic sensibility. The words and ideas are compressed, a world in a sentence, as in poetry. Much hinges on challenges with moving around - schools, other countries, airplanes, buildings. It appears he is self-defined by his disability even though he tries hard to over come it, a contradiction, but an understandable one when this is all you have known. As he seeks to achieve ableness, we seek to understand disability through his story. ( )
1 voter Stbalbach | Aug 30, 2021 |
audio (5 hours) nonfiction/memoir/philosophical wonderings

For someone that supposedly doesn't like to "overexplain," the author sure can talk about odd things of little consequence for long periods of time. I was expecting more memoir and got bored with this PhD's eloquent waxings on whatever else carried his fancy.

Not for me, but surely another reader will appreciate this more!
  reader1009 | Aug 23, 2021 |
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Biography & Autobiography. Nonfiction. Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life-his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father-he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human. Along the way, Grue moves effortlessly between his own story and those of others, incorporating reflections on philosophy, film, art, and the work of writers from Joan Didion to Michael Foucault. I Live a Life Like Yours is a love story. It is rich with loss, sorrow, and joy, and with the details of one life: a girlfriend pushing Grue through the airport and forgetting him next to the baggage claim; schoolmates forming a chain behind his wheelchair on the ice one winter day; his parents writing desperate letters in search of proper treatment for their son; his own young son climbing into his lap as he sits in his wheelchair, only to leap down and run away too quickly to catch. It is a story about accepting one's own body and limitations, and learning to love life as it is while remaining open to hope and discovery.

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