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Vaccines Did Not Cause Rachel's Autism par…
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Vaccines Did Not Cause Rachel's Autism (édition 2018)

par Peter J. Hotez (Auteur), Arthur L. Caplan (Auteur), Arthur L. Caplan (Avant-propos)

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532486,680 (3.86)3
"In 1994, Peter J. Hotez's nineteen-month-old daughter, Rachel, was diagnosed with autism. Dr. Hotez, a pediatrician-scientist who develops vaccines for neglected tropical diseases affecting the world's poorest people, became troubled by the decades-long rise of the influential anti-vaccine community and their inescapable narrative around childhood vaccines and autism. The alleged link between the two was first espoused in a fraudulent scientific paper, long since retracted, but the story shows no signs of letting up. As a result, we've seen deadly and disabling outbreaks of vaccine-preventable diseases around the country, and Texas, where Hotez lives, is at particular risk. In Vaccines Did Not Cause Rachel's Autism, Hotez draws on his experiences as a pediatrician, vaccine scientist, and father of an autistic child. Outlining the arguments on both sides of the debate, he examines the science that refutes the concerns of the anti-vaccine movement, debunks current conspiracy theories alleging a cover-up by the CDC, and critiques the scientific community's failure to effectively communicate the facts about vaccines and autism to the general public, all while sharing his very personal story of raising a now-adult daughter with autism. A uniquely authoritative account, this important book persuasively provides evidence for the genetic basis of autism and illustrates how the neurodevelopmental pathways of autism are under way before birth. Dr. Hotez reminds readers of the many victories of vaccines over disease while warning about the growing dangers of the anti-vaccine movement, especially in the United States and Europe. A former US Science Envoy for the Department of State, he also explains what's at stake if the movement continues to gain ground. Opening with a foreword by leading medical ethicist Arthur L. Caplan, this book is a must-read for parent groups, child advocates, teachers, health-care providers, government policymakers, health and science policy experts, and anyone caring for a family member or friend with autism"--Provided by publisher.… (plus d'informations)
Membre:dockevorkian
Titre:Vaccines Did Not Cause Rachel's Autism
Auteurs:Peter J. Hotez (Auteur)
Autres auteurs:Arthur L. Caplan (Auteur), Arthur L. Caplan (Avant-propos)
Info:Johns Hopkins University Press (2018), Edition: 1, 240 pages
Collections:Reference
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Mots-clés:1205, educational

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Vaccines Did Not Cause Rachel's Autism: My Journey as a Vaccine Scientist, Pediatrician, and Autism Dad par Peter J. Hotez

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It's good to finally have a work that shows someone who has a family member with autism AND deals with vaccines.

Vaccines do not cause autism.

I would have appreciated hearing more from Ann about raising Rachel, especially since the burden of childcare and dealing with Rachel's autism fell on her. It would have been good to hear from Rachel too, but then she may have opted out of putting her point of view in the book and that's okay.

It was helpful showing how Rachel progressed and how she behaved along with the input from Ann who had noticed something was different with Rachel before the diagnosis of autism. Showing the struggles, battles, heartache, and the good was helpful in showing that those on the autism spectrum and their families have to deal and cope with behaviors from their loved ones without a lot of support especially as an autistic child becomes an adult. It was also helpful to show an autistic girl because autism in girls has increased in the last few decades. Having a face to put to the diagnosis rather than a meaningless phrase of paper will help many see the humanity of those with autism rather than a impersonal diagnosis.

It's genetic and has about a 1000 genes that affect the development of autism with only 65 genes currently identified. The genes that cause autism affect development in the womb, not caused by vaccines. Autistic behaviors start before certain vaccines are given, ones falsely accused of "causing" autism. People are born with autism, not infected with it. Those with autism are usually born with a larger head (macrocephaly), don't bond or don't bond well with parents, cry easily and can't be consoled as babies, start overdeveloping their brains starting at 6 months, may regress in development milestones or be slow to meet them and are usually diagnosed between 18-24 months.

We don't provide enough services and support for those with autism and families that have an autistic family member. Vaccines are safe. Let's put more effort into developing and funding support and services for those on the autism spectrum and their loved ones. That's what we really need more of. ( )
  pacbox | Jul 9, 2022 |
Peter Hotez is a pediatrician, a vaccine scientist specializing in neglected tropical diseases, neglected mainly because they affect mostly very poor people, and the father of an autistic daughter.

It's the intersection between his specialization in vaccines, and the fact that he has an autistic daughter, that has given him perhaps more public attention than he really enjoys. Well, that, and that fact that is not shy about speaking up about the absolute nonsense that is the anti-vaccine movement.

It's important to realize that the modern anti-vaccine movement started in 1998, when Andrew Wakefield, who was then a British physician, and twelve colleagues published a paper in the Lancet, purporting to prove that the MMR (measles, mumps, rubella) vaccine caused autism in children. This was a startling and alarming conclusion, and new epidemiological studies were conducted--and no one could replicate the results. It was known that Wakefield's "study" only involved twelve patients. What wasn't initially known is that he was paid by attorneys undertaking lawsuits against vaccine manufacturers, that he and his team had conducted invasive procedures on the children without obtaining ethical clearance, and lied about their results. Eventually, due to journalistic investigation rather than the procedures the Lancet should have had in place, all of this came out, and the Lancet had to take the unusual step of fully retracting the paper. In addition, in 2010, which personally I find to be an appalling delay, Andrew Wakefield was struck off the UK medical register, losing his right to practice medicine.

He moved to Texas, which is where Peter Hotez ultimately moved with his family, in the furtherance of his goal of conducting well-funded research on developing vaccines for more of those neglected tropical diseases than his previous positions had made possible.

Hotez also, over the course of his work in developing vaccines, and his life as the father of an autistic daughter, became increasingly outspoken on the false connection between vaccines and autism, working hard to make clear how completely wrong-headed this is. Although autism is typically diagnosed in early childhood, around the time many vaccines are given, based on autism symptoms first manifesting then, the changes in brain structure are detectable much earlier, even in utero. In addition, every time the anti-vaccine movement identifies a different aspect of vaccines that in their view is obviously the cause (this time for sure!) of autism, subsequent studies find no such connection, and even when that aspect can be and is removed, as in the removal of thimerosol, a preservative, from most vaccines, the rate of new cases of autism doesn't decline.

Hotez lays all this out in clear, understandable, accessible terms, and with the passion of a dedicated professional. He also discusses his autistic daughter, her symptoms and experiences, and how he and his family have been personally targeted because he is, in the eyes of some of the anti-vaccine movement, Evil, because he has an autistic daughter, and yet not only advocates for vaccination, but conducts research to develop new vaccines.

This is a clear, readable, informative, passionate book. Recommended.

I bought this audiobook. ( )
  LisCarey | Aug 10, 2021 |
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"In 1994, Peter J. Hotez's nineteen-month-old daughter, Rachel, was diagnosed with autism. Dr. Hotez, a pediatrician-scientist who develops vaccines for neglected tropical diseases affecting the world's poorest people, became troubled by the decades-long rise of the influential anti-vaccine community and their inescapable narrative around childhood vaccines and autism. The alleged link between the two was first espoused in a fraudulent scientific paper, long since retracted, but the story shows no signs of letting up. As a result, we've seen deadly and disabling outbreaks of vaccine-preventable diseases around the country, and Texas, where Hotez lives, is at particular risk. In Vaccines Did Not Cause Rachel's Autism, Hotez draws on his experiences as a pediatrician, vaccine scientist, and father of an autistic child. Outlining the arguments on both sides of the debate, he examines the science that refutes the concerns of the anti-vaccine movement, debunks current conspiracy theories alleging a cover-up by the CDC, and critiques the scientific community's failure to effectively communicate the facts about vaccines and autism to the general public, all while sharing his very personal story of raising a now-adult daughter with autism. A uniquely authoritative account, this important book persuasively provides evidence for the genetic basis of autism and illustrates how the neurodevelopmental pathways of autism are under way before birth. Dr. Hotez reminds readers of the many victories of vaccines over disease while warning about the growing dangers of the anti-vaccine movement, especially in the United States and Europe. A former US Science Envoy for the Department of State, he also explains what's at stake if the movement continues to gain ground. Opening with a foreword by leading medical ethicist Arthur L. Caplan, this book is a must-read for parent groups, child advocates, teachers, health-care providers, government policymakers, health and science policy experts, and anyone caring for a family member or friend with autism"--Provided by publisher.

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