AccueilGroupesDiscussionsPlusTendances
Site de recherche
Ce site utilise des cookies pour fournir nos services, optimiser les performances, pour les analyses, et (si vous n'êtes pas connecté) pour les publicités. En utilisant Librarything, vous reconnaissez avoir lu et compris nos conditions générales d'utilisation et de services. Votre utilisation du site et de ses services vaut acceptation de ces conditions et termes.

Résultats trouvés sur Google Books

Cliquer sur une vignette pour aller sur Google Books.

Chargement...

The Inheritance: A Family on the Front Lines of the Battle Against Alzheimer's Disease

par Niki Kapsambelis

Autres auteurs: Voir la section autres auteur(e)s.

MembresCritiquesPopularitéÉvaluation moyenneMentions
363680,466 (4.33)1
"An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments--and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. Their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this incredible narrative redefines courage in the face of one of the most pervasive and mysterious pandemics of our time"--… (plus d'informations)
Aucun
Chargement...

Inscrivez-vous à LibraryThing pour découvrir si vous aimerez ce livre

Actuellement, il n'y a pas de discussions au sujet de ce livre.

» Voir aussi la mention 1

3 sur 3
Alzheimer's Disease is one of the worst things that I can think of happening to a person. At least with a heart attack or in some cases with a stroke, you are still capable of remembering who you are. Alzheimer's is an atrocious illness, afflicting both the patient and the caretaker as the caretaker is prone to be the target of patient's mood swings and day to day problems. While it was first systematically named and categorized in 1906 by Alois Alzheimer, this condition has been around for millennia.

This book is the story of one family's quest to find answers. It focuses on one particular family and how they dealt with the hand they received in life. At its core, Alzheimer's Disease is characterized by the build-up of beta-amyloid proteins and tau protein tangles that choke brain cells to death. This book covers both the human element and the scientific element of the disease. By talking to a particularly brave and stalwart family, the DeMoes, the author was able to give a human element to the disease, even as it was taking them to their limits. The scientific aspect talks about the history of how Alzheimer's was diagnosed and its entry into the public sphere. Many famous people have been diagnosed with it, so it has gained public interest and notoriety in some areas. Perhaps one day Alzheimer's will be a disease of the past, but at the moment it only robs one of theirs.

This book especially intrigued me since my grandmother had Alzheimer's Disease, and at the time no one knew what it was. Since she developed it so early, I never actually got to meet her. I'll be honest, some parts of the book had me choked up with emotion. ( )
  Floyd3345 | Jun 15, 2019 |
This is an amazing book, non-fiction of how several families with the Alzheimer's gene used their precious years allowing themselves to be studied as part of a world wide study. The DeMoe family, with father, Galen "Moe" and mother, Gail had six children. Moe developed Alzheimer's at an early age and died by age 58. Of their six children, five inherited the genetic mutation that causes Alzheimer's in 100% of people with the gene and a 50% chance of being passed on to the next generation. These incredible people allowed themselves and their family to be an important part of the studies that, hopefully, will lead to hope for future treatments and a cure for this horrible disease. I think every one of us has had to deal with this nightmare disease in our families or will do so in the near future. What these families have done and are still doing to help the doctors to find treatments and hopefully a cure for Alzheimer's in our lifetime is nothing short of heroic. Definitely recommended. ( )
  Dianekeenoy | May 29, 2017 |
I won a copy of 'The Inheritance: A Family on the Front Lines of the Battle Against Alzheimer's Disease" by Niki Kapsambelis in a GOODREADS giveaway! ( )
  tenamouse67 | Jan 6, 2018 |
3 sur 3
aucune critique | ajouter une critique

» Ajouter d'autres auteur(e)s

Nom de l'auteurRôleType d'auteurŒuvre ?Statut
Niki Kapsambelisauteur principaltoutes les éditionscalculé
Beaulieu, CallieNarrateurauteur secondairequelques éditionsconfirmé
Vous devez vous identifier pour modifier le Partage des connaissances.
Pour plus d'aide, voir la page Aide sur le Partage des connaissances [en anglais].
Titre canonique
Titre original
Titres alternatifs
Date de première publication
Personnes ou personnages
Lieux importants
Évènements importants
Films connexes
Épigraphe
Dédicace
Premiers mots
Citations
Derniers mots
Notice de désambigüisation
Directeur de publication
Courtes éloges de critiques
Langue d'origine
DDC/MDS canonique
LCC canonique

Références à cette œuvre sur des ressources externes.

Wikipédia en anglais

Aucun

"An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments--and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. Their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this incredible narrative redefines courage in the face of one of the most pervasive and mysterious pandemics of our time"--

Aucune description trouvée dans une bibliothèque

Description du livre
Résumé sous forme de haïku

Discussion en cours

Aucun

Couvertures populaires

Vos raccourcis

Évaluation

Moyenne: (4.33)
0.5
1
1.5
2
2.5
3 1
3.5 1
4
4.5 1
5 3

Est-ce vous ?

Devenez un(e) auteur LibraryThing.

 

À propos | Contact | LibraryThing.com | Respect de la vie privée et règles d'utilisation | Aide/FAQ | Blog | Boutique | APIs | TinyCat | Bibliothèques historiques | Critiques en avant-première | Partage des connaissances | 204,741,862 livres! | Barre supérieure: Toujours visible