MembreSam_8.Mar-49

Nom réel

Sammie Marsalli

A propos de ma bibliothèque

Amateur home caregivers of a loved one with Alzheimer´s are on the loneliest possible life journey. Their deepest feelings are unexpressed even to their family members so as not to intrude and burden them with added weight on their shoulders. These emotions are kept in a " human vault" which makes caregiving extremely lonely. They simply go unshared even with their closest friends. Emotions build a volcano ready to explode at any moment. Sadness is deep and daily at any given moment. Memories become dangerous when we compare the "before and after" of Alzheimer's sinking us into loneliness and depression. It becomes a silent battle of courage with ourselves as well as a battle for survival for our loved one. As Alzheimer´s caregivers in the home, we will sacrifice whatever it takes, suspend any activity we enjoy, ignore our basic necessities, and neglect our health to prevent our loved ones from shutting down.

Caregivers we are vulnerable to frustrations that test our temperament. Desperation often sets in. We easily forget that what is logical is not logical to the person we are caring for. Caregiver's of Alzheimer´s measure successes and failures differently than before. The “bar” has completely changed. We are most generous especially with other caregivers always being available day and night to help them in very difficult situations.

Caregiving for a loved one with Alzheimer's in the home without any outside help is extremely difficult but in most cases there is no other option. Outside professional help cannot respond in "real time" when behavior changes occur. Only home caregivers can. No one has the exact key as to how to respond to these changes as there are no two profile behavioral changes alike in the same stage of the disease.

Consequently, there isn't a standard therapy to apply as each person reacts differently in each stage. There are really no fixed "do this'' and "do that" rules or a set guide for the home caregiver to follow. Historical habits and past idiosyncrasies influence behavioral changes greatly for those with Alzheimer's. Even the stages of Alzheimer's vary in their characteristics. Only experiences from others can be your guide. What works for me may not work for you. Caregivers are completely on their own.

Alzheimer´s hospice care really begins in your home on the very first day of the diagnosis. As a result, I began to invent my own therapies. Each family as caregivers find themselves alone inventing their own therapies to mitigate behavioral changes and needs.

As there are no two Alzheimer's victims alike, there are no two home caregivers alike. We are all different in the way we react. That is why there isn´t a “supposed to do list” to follow. Our patience levels vary as well as some of the personal tools we apply because we are all dealing with very different behavior changes. Home caregivers only have trial and error experience to rely on as their guide.

I realize there are other "amateur Alzheimer´s home caregivers" like me on their own trying to take care of a loved one with Alzheimer's Disease. Like everyone I learned the hard way on my own how to mitigate tremendous changes in behavior with my wife. It's not easy as she was in the beginning of the advanced stages, unable to speak.

Hopefully, my books "Preventing Her Shutdown, Losing My Wife To Alzheimer's" and "62 Tips For Caregivers Of Alzheimer's, To Delay Shutdown," become a shortcut to avoid some of the desperation, frustration and sadness on their tortuous caregiving journey.

Preventing Her Shutdown, Losing My Wife To Alzheimer´s

62 Tips For Caregivers Of Alzheimer´s To Delay Shutdown

A propos de moi

As an author I am certainly not an expert or an authority on Alzheimer's. I am definitely not a professional author and didn´t pretend to write an authoritative masterpiece. I never pretended to be any one of those things. I am simply an ordinary “John Doe” 24/7 hospice caregiver, husband, sharing my experiences, reactions, inventing therapies while caring for my wife at home with Alzheimer's. We have been married 44 years, 3 kids now grown up, a great dog most of those years, a typical family on our own trying to hold on to my wife and avoid her shutdown.

Hospice home care for a loved one with Alzheimer's begins on the very first day it is diagnosed. This home care without any outside help is extremely difficult but usually there is no other option. Outside professional help cannot respond “in real time” when radical behavioral changes occur. Only home caregivers can. No one has the exact key as to how to respond to these changes as there are no two profile behavioral changes alike in the same stage of the disease.

Consequently, there isn't a standard therapy to apply as each person reacts differently in each stage. Even the stages of Alzheimer's vary in their characteristics. Only experiences from others can be your guide. What works for me may not work for you. Hospice home caregivers, no two alike, are completely on their own.

I began to invent my own home therapy. Family home caregivers find themselves alone inventing their own hospice home care to mitigate behavioral changes and needs.

I realize there are other hospice home caregivers" amateurs, like me, amateurs, trying to take care of a loved one with Alzheimer's. Like everyone, I was learning the hard way by trial and error to mitigate tremendous changes in behavior with my wife. It wasn't easy as she was in the beginning of the advanced stages of Alzheimer's, unable to speak, at the time of these writings. I share my most personal experiences and reactions in “real time” to keep my wife “connected”.

Hopefully, my books "Preventing Her Shutdown, Losing My Wife To Alzheimer's" and 62 Tips For Caregivers Of Alzheimer's, To Delay Shutdown," become a shortcut for hospice caregivers of Alzheimer´s to avoid some of the desperation, frustration and sadness on their tortuous caregiving journey.

About Me

https://www.amazon.com/author/sammiemarsallihomecaregiver

Lieu (géographique)

Santiago Chile

Page d'accueil

https://www.amazon.com/dp/B0CVG3FWB5?binding=kindle_edition&ref=dbs_dp_rwt_sb_pc_tkin

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